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Running head: INTERVIEW: POCKET CANCER CARE GUIDE1Interview: Pocket Cancer Care GuideStudent
INTERVIEW: POCKET CANCER CARE GUIDE2Interview: Pocket Cancer Care GuideDocumentation in my healthcare career has transitioned from a paper and faxed basedsystem through the transition to a nearly 100% digital environment. In 1997-98, as I assisted myfather with his navigation through a journey with cancer, I carried a blue, spiral bound notebookwith me, appropriately and lovingly, referred to as the ‘blue book.’ The ‘blue book’ served as ourfamily communication tool.As questions arose prior to appointments we jotted them in the ‘bluebook’, we recorded lab values and test results, appointment dates and the responses the providershad to our questions.Everyone knew that the ‘blue book’ was the central communication toolfor my father’s medical journey.However, I was the only one in the family that consistentlyremembered to document in the ‘blue book’ and was especially frustrated when my familymembers were not able to recall the details of the answers to my questions they read from the‘blue book’ to the providers when I was unable to attend appointments.When this assignment was posed in this course my experience, with my father, led me tosearch, initially, for an electronic application that would replace the ‘blue book’ in digital world.I also wanted to honor my father who was one of the original software engineers andprogrammers for the first general purpose, and programable, electronic digital computer in theearly 1950’s.The Electronic Numerical Integrator and Computer (ENIAC) was designed andbuilt by John Mauchly and Presper Eckert (McGuire, 2007) who recruited my father fromgraduate school to work with them.Would not my father be amazed that the digital capacity ofhis room sized ENIAC can now fit in the palm of one’s hand in a smart phone?Application: The Pocket Cancer Care GuideThe Pocket Cancer Care Guide (PCCG) was designed to facilitate patient-cliniciancommunication through patient initiated ‘care guides’ that allow the user to select common pre-
INTERVIEW: POCKET CANCER CARE GUIDE3determined questions from 23 categories related to cancer diagnosis, treatment, and quality oflife.The user is also able to craft custom questions individual to their own needs.Theindividualized care guides are populated and organized by the user, the patient, to use as promptsduring visits with their clinician (National Coalition for Cancer Survivorship [NCCD], n.d.).

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Term
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PCCG

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