Unformatted text preview: EEX 2000 Homework Assignment 6: Welcome to Holland & Family Conversations Name: Sarah Sherr (7827-9590) You will need to read Knestrict & Kuchey (2009) and watch the video Welcome to Holland and the “Family Conversations” clips to respond to the items below. 1. Explain the idea of family resiliency. Family resiliency is how well the family is about to function while dealing with a child who has a severe disability, especially in coping with the stress factors of the child. Family resilience has been described as the family's ability to withstand hardships and rebound from adversity while becoming more strengthened and resourceful. Families are deemed to have a higher resilience when they are able to establish different routines and rituals that create a “normal” atmosphere within the home. 2. What does it mean for a family to have rules? How does that help a family dealing with disability be more resilient? Rules provide stability for the family as well as normalcy for the parents with their disabled child because with rules in place the parents have similar expectations from the disabled child as well as the other child or child without disabilities might have. Rhythmic families establish rules, rituals, and routines in their home. This fact was important in establishing order and predictability in the home. In the 17 families that had firm set of rules that included the child with disability helped them become more unified. 3. What does it mean for a family to have routines? Explain the importance of routines for families dealing with disability. Routines were seen as crucial in the family's pursuit of resilience. Children and people in general who have disabilities tend to be happier and act in a better manner with routines than they do within. It gives parents something to expect from their child and the child something to look forward to that gives their life structure. 4. What are family rituals? Give an example of a family ritual that Loraine Roberts and Wendy (in Refrigerator Mothers) have. What makes it a ritual? Family rituals are routines that occur on a regular basis, but they have a deeper meaning. They become extremely important to the family and the disabled child on the emotional side as well as striving to achieve a more normal lifestyle. One example of a family ritual is having a family member take the child for a weekend. This gives the parents time off and also the family member to become closer the to child and maybe change their view on how a child with disabilities lives life. 5. What is meant by criterion-referencing with respect to families’ perceptions of disability? How is this seen in the case of Maria Mombile thoughts about her son, Shem (in Refrigerator Mothers)? Criterion-referencing is when the family is asked what their disabled child is like and how their disability can effect their families structure. This refers to the understanding of families of disabled children to view the disabled child in their own light instead of comparing them to “normal” children. This is seen in the case of Maria as she states that people with autism have another culture, another language, and another way of communicating. She says, that the way they behave may not make sense to us, but those with autism do have logic. 6. Briefly explain how socio-economic status impacts family resilience, particularly on families with lower SES. Family resilience is much harder for families with lower SES because they have less access to beneficial services such as insurance, schools, and transportation. This all makes life and resiliency much harder for the family and can create a less table household. However, once their socioeconomic status rises, families begin to embrace their child and what their child can accomplish regardless of their disability. 7. How do parents in the “Family Conversations” demonstrate resilience (as discussed by Knestrict in Welcome to Holland)? What are some factors that contribute to their being resilient? The parents in “Family Conversations” demonstrated resilience by being able to accept that their children had disabilities. At first they blamed themselves for possibly doingsomething wrong during their pregnancy, but then they realized that they didn’t and itwas just something that happened. Other parents had difficulty accepting it as well andhad to constantly talk to doctors about their child’s disability until they finally came toterms with it. They all learned that spending time together as a family, as well asfollowing specific routines, was a very important factor in their families’ resilience. ...
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