Human_Genome_Research_Law (1).doc

Human_Genome_Research_Law (1).doc - Disclaimer The English...

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Disclaimer: The English language text below is provided by the Translation and Terminology Centre for information only; it confers no rights and imposes no obligations separate from those conferred or imposed by the legislation formally adopted and published. Only the latter is authentic. The original Latvian text uses masculine pronouns in the singular. The Translation and Terminology Centre uses the principle of gender-neutral language in its English translations. In addition, gender-specific Latvian nouns have been translated as gender- neutral terms, e.g. chairperson. Text consolidated by Tulkošanas un terminoloģijas centrs (Translation and Terminology Centre) with amending laws of: 12. June 2003; 24 February 2005. If a whole or part of a section has been amended, the date of the amending law appears in square brackets at the end of the section. If a whole section, paragraph or clause has been deleted, the date of the deletion appears in square brackets beside the deleted section, paragraph or clause. The Saeima 1 has adopted and the President has proclaimed the following Law: Human Genome Research Law Chapter I General Provisions Section 1. Terms Used in this Law The following terms are used in this Law: 1) decoding – the personal identification of a gene donor by using the unique code which has been assigned to a tissue sample, a description of DNA, a description of the state of health or genealogy, or the identification of a tissue sample, description of DNA, description of the state of health or genealogy on the basis of the identity of the gene donor; 2) tissue sample – cells, the DNA thereof, intercellular substances and body fluids taken from a human for the performance of genetic research; 3) DNA – the molecule of deoxyribonucleic acid that contains genetic information; 4) description of DNA – the digital model of DNA created as a result of the genetic research; 5) genome – the aggregate of the genes of an organism containing genetic information regarding the structure of the organism, life-processes therein and the response of the organism to the environment; 6) gene – the part of the DNA molecule which contains genetic information regarding the synthesis of an organism’s protein or performs regulating functions by determining the structure of some individual component of the organism or the stage of the life process; 7) gene donor – a natural person who transfers a tissue sample for genetic research; 8) genome database – a set of data containing coded descriptions of the DNA, coded descriptions of the state of health, coded genealogical and genetic data, as well as coded DNA samples and coded tissue samples to be used for genetic research; 9) database of gene donors – data that allows the identification of a gene donor and genealogy in the genome database; 10) gene researcher – a natural person or a legal person who performs genetic research; 11) genealogy – information regarding ascendants and descendants of a gene donor:
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