Wk_of_Sept._28_-_PPT_Handout

Wk_of_Sept._28_-_PPT_Handout - 9/29/09 Impact of...

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Unformatted text preview: 9/29/09 Impact of Disabili/es: Home Week of September 28, 2009 Family Climate and Disabili/es  We will use the term “family climate” to refer to the general atmosphere in the home.  Family climate can depend upon how well the family works as a unit.  We will consider these factors as they relate to the family climate:  Cultural influences  Family roles  Expecta/ons for how family members func/on within the system. Family Climate and Disabili/es: Influence of Culture  Cultures view disabili/es from different perspec/ves.  Result of spiritual malevolence  Cause for shame  Due to past wrongs of parents or ancestors  Simply the way things are  Viewed as a blessing (unique learning or experien/al opportunity) 1 9/29/09 Family Climate and Disabili/es: Influence of Culture   Skinner & Weisner (2007)   Recogni/on of disability can be influenced by cultural expecta/ons.   AUer iden/fica/on, families process informa/on within their cultural context.  Families oUen seek informa/on about family members’ disabili/es that fit with their own experiences and beliefs. Culture influences relad  percepons of disabilies: what is believed about “personhood” What is perceived as “normal” What is believed about “equali”   Religious beliefs are oUen an important part of how families consider disability. Family Climate and Disability: Parent Roles & Responsibili/es   What roles do parents play within the family?   Caregiver   Provider   Teacher   Counselor   Marriage partner   Advocate   Teacher   Behavior support specialist (Heward, 2010) (National Institute for Literacy, 1999) Family Climate and Disability: Child Roles & Responsibili/es  What roles do children play within the family? 2 9/29/09 Family Climate and Disability: How does disability impact the family?  Today we’ll look at the effect of siblings with disabili/es and parents with disabili/es. Family Climate and Disability: Siblings with Disabili/es   Some similari/es exist among siblings.   Similarity 1: They find posi/ve and nega/ve results.   Some see their lives a different from others, but not necessarily harder.   Physical problems make it necessary to always be careful.   Providing care can limit personal ac/vi/es.   Creates unique opportuni/es.   Similarity 2: They grow toward acceptance of the disability.   Some experience guilt over not having a disability.   Siblings report becoming more accep/ng over /me. Bellin, Kovacs, & Sawin (2008) Family Climate and Disability: Siblings with Disabili/es Bellin, Kovacs, & Sawin (2008) 3 9/29/09 Family Climate and Disability: Parents with Disabili/es  Consider the role and responsibili/es of children whose parents have intellectual disabili/es.  The number of parents with ID is not known. However, it is reasonable to expect the number to increase because of  Greater recogni/on of the rights of people with ID  Decrease in prac/ces such as forced steriliza/on  Es/mates of the number of parents in the US with ID—though unreliable—are as high as 1.4 million National Resource Center for Foster Care & Permanency Planning, 2003 Family Climate and Disability: Parents with Disabili/es  Parents with ID oUen experience difficul/es  They have difficulty learning about childcare.  They appear to be abusive or neglecdul  They don’t think through the consequences of their ac/ons  They don’t read cues from their children  They are more likely than other parents to lose custody of their children (at least temporarily)  They oUen are not adequately represented during legal proceedings. National Resource Center for Foster Care & Permanency Planning, 2003 Family Climate and Disability: Parents with Disabili/es  Parents with ID are more successful when they have paren/ng support  Educa/on programs  In home visits/services National Resource Center for Foster Care & Permanency Planning, 2003 4 9/29/09 Family Climate and Disability: Parents with Disabili/es  Adap/ve equip is useful to parents with physical disabili/es  hfp://www.disabledparents.net/adap/ve.html 5 ...
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This note was uploaded on 02/10/2011 for the course EEX 2000 taught by Professor Elizabethfilippi during the Spring '11 term at University of Florida.

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