JOURNAL ARTICLE#2 - EBSCOhost Back 1 article(s will be...

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Sheet1 Page 1 EBSCOhost Back 1 article(s) will be saved. To continue, in Internet Explorer, select FILE then SAVE AS from your browser's toolbar above. Be sure to save as a plain text file (.txt) or a 'Web Page, HTML only' file (.html). In Netscape, select FILE then SAVE AS from your browser's toolbar above. EBSCO Publishing Citation Format: APA (American Psychological Assoc.): NOTE: Review the instructions at and make any necessary corrections before using. Pay special attention to personal names, capitalization, and dates. Always consult your library resources for the exact formatting and punctuation guidelines. ReferencesEllingson, S., & Fuller, J. D. (1998). A good death? Finding a balance between the interests of patients and caregivers. Generations, 22(3), 87. Retrieved from EBSCOhost. <!--Additional Information: Persistent link to this record (Permalink): e End of citation--> A GOOD DEATH? FINDING A BALANCE BETWEEN THE INTERESTS OF PATIENTS AND CAREGIVERS Mr. T was a 76-year-old man who lived with his wife in a small, run-down house. She was thirty years younger, and they had met during a difficult time in her life, when she was new to the United States, did not speak the language, and had no money. Marrying Mr. T had solved these problems, and she was grateful. The marriage over the ensuing years was not an easy one. He was a very demanding husband and verbally abusive. Still, a sense of obligation for all he had done for her kept Mrs. T with him to the end. Mr. T suffered a stroke, leaving half of his body paralyzed. He was confined to his bed or wheelchair, and had to be fed through a gastrostomy tube. His wife had to attend to his daily functions as he lost control of both bowel and bladder. He suffered from diabetes and dementia and thus required constant monitoring. To make matters worse, he adamantly refused to participate in his care and continued to be verbally abusive to Mrs. T. He also demanded that he be allowed to die at home under her care, and he refused to consider placement in any kind of care facility. Mrs. T remained devoted and managed to keep him at home. During the day she worked full time as a nurse's aide in a local nursing home, and at night she cared for her husband, often working around the clock. She hired apart-time caregiver to help while she was away at work. The physical, emotional, and
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Sheet1 Page 2 psychological stress of caring for her husband was tremendous and seriously compromised her quality of life. An excerpt from a letter she wrote to her healthcare providers speaks of the difficulties of caring for a terminally ill patient at home: I have been changing the caregiver almost every month. No one can't last longer than a month, they couldn't take care of him, he demanded too much to both caregiver and me. For example: He sat in the wheelchair for a few hours, he then
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JOURNAL ARTICLE#2 - EBSCOhost Back 1 article(s will be...

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