ebn neuro - Summary A feasibility study of a...

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Summary A feasibility study of a psychoeducational family intervention, "Be Seizure Smart," aimed at improving attitudes and increasing family functioning was conducted. The intervention was individually tailored for each family member by (a) providing information about epilepsy, treatment, and seizure management according to the individual's knowledge base, (b) addressing unique concerns and fears, and (c) providing emotional support. Participants were 10 families of children with epilepsy ages 7 to 13 years. Data were collected about 2 weeks before and after the intervention, which was delivered over 3 to 4 months, by using structured interviews. One-tailed paired t tests were used to determine changes from pretest to posttest. Participants also were asked to evaluate the intervention and make suggestions about how the intervention could better meet their needs. Results generally indicated that the intervention had the anticipated effects. Knowledge scores increased for both parents and children. Children had fewer concerns and were more satisfied with family relationships. Information and support needs decreased for both children and their parents. Information need reductions were statistically significant for both parents and children; support need reductions were significantly reduced only for parents. Although child and parent attitudes were more positive after the intervention, this finding was not statistically significant. I. Clinical Question How feasible is the family seizure management program? II. Citation A feasibility study of a family seizure management program: “Be seizure smart” by Austin, Joan K. McNelis, Angela M. Shore, Cheryl P. Dunn, David W. Musick, Beverly Journal of Neuroscience Nursing, February 2002 III. Study Characteristics Ten families completed the program; however, data are available on only nine children with seizures because one child was unable to complete the interview due to a learning disability. The three girls and six boys, ages 7 to 13 years (mean age 10.6 years), had been diagnosed with epilepsy for at least two months but less than one year. Eight mothers, one grandmother (who was the child's primary caregiver), two fathers, and four siblings participated in the study. For the pre-intervention assessment, parent and child versions of three instruments were administered to measure (a) general concerns and fears about epilepsy; (b) general knowledge about seizures, and (c) psychosocial care needs (information and support). In addition, a scale to measure parent concerns about seizure management was administered to parents. To measure effects of the intervention, instruments were administered to parents and children to measure attitudes and family functioning. All data were collected during telephone interviews. Each item was read verbatim to each participant. Relative privacy was ensured by doing individual telephone interviews and having the family members respond to questions by letter or number. All
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