Michael Bustin Double Entry Journal

Michael Bustin Double Entry Journal - Ashley’s disease...

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Michael Bustin Double Entry Journal Ashley has a condition called static encephalopathy. Her parents nickname her “Pillow Angel”. Ashley’s parents try to make her the face of her condition to spread awareness. Ashley has the condition called static encephalopathy and her treatment options are extremely controversial and experimental. Ashley constantly cries because of the pain she has to endure because of the condition. Her parents nickname her “Pillow Angel” because she constantly has to lie on a pillow to avoid discomfort. The author claims that this is just another name like “retard” or “cripple”. Her parents try to spread her face though an internet site to help spread the awareness of
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Unformatted text preview: Ashley’s disease. The author doesn’t like this and believes its immoral, while I believe that as long their spreading her face only to help others with the same condition and to try to get medical treatment breakthroughs then it is a necessary step that the parents must make. I agree with the author’s statement that parents have no right to end a child’s life and should only play a minor role in the decision and that The author writes how parents should not be able to sterilize and kill their disabled children. the decision should remain entirely under the decision of the person in which the sterilization should occur....
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