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Lecture 12- Ethics

Lecture 12- Ethics - I Research Ethics A How research part...

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I. Research Ethics A. How research participants should be treated You need to follow a set of procedures, the participants need to feel good about the research B. How data are collected, analyzed, and reported C. How research results are used II. A Little History (benchmark studies) - Reflect ideas that participants rights were not protected - Not much attention paid to participant rights - Today must require voluntary agreement Nazi Medical War Crimes (World War II) - Conducted scientific research on camp victims who were not willing and had no ideas what the outcomes of the research would be - How would human beings respond to high levels of radiation without the participants realizing Tuskegee Syphilis Study (1930-1972) - Solicited a series of low-income African American men who had gone untreated for syphilis - Researchers had good intentions (wanted to understand and develop new medicines for treated syphilis) - Over 1000 African American males who couldn’t afford medical treatment o Found through snowball sampling - They were told they would get treatment for syphilis but only 2/3 got treatment but the other 1/3 was told that they did get the treatment (all were told they would get the treatment) o Misled participants o US Public Health Service o Government compensation to victims families- $50 for casket/burial NY Jewish Chronic Disease Hospital Study (1963) - Cancer cells given to elderly individuals to see the growth of cancer - Elderly didn’t know - Justification: didn’t have long to live anyways The Willowbrook Study (1963-1966) - Mentally disabled children exposed to hepatitis - Not told they were being exposed - Wanted to study growth of hepatitis History
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