HG-by-Karen-Jensen

HG-by-Karen-Jensen - Hyperemesis Gravidarum Hyperemesis...

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Unformatted text preview: Hyperemesis Gravidarum Hyperemesis When the joy of creating life turns When into a struggle for survival and hope into I Wish . . . I wish that I had never tried to get pregnant I wish that in a few months I would be able to hold my baby In Honor of Casey Lee Lost and Loved Angel Hyperemesis Gravidarum Hyperemesis "I weighed 96 lbs at one point and looked like walking death. I wouldn't wish it on my worst enemy." HG is a debilitating and potentially life threatening pregnancy disease marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting with potential adverse consequences for the newborn(s). “With more information, we can help families bring their babies into this world with as little struggle as possible.” Karen - The HER Foundation The All information is provided by the HER Foundation and survivors of HG Complications for the Mother Complications Debilitating fatigue – inability to work or take care Debilitating of their families of Malnutrition and dehydration Frequent vomiting of blood or bile Organ dysfunction/failure – gallbladder, Organ liver, gastrointestinal, heart heart "I lived on my bathroom floor with my Depression and Depression down comforter over me or in the anxiety anxiety hospital getting an IV... My life turned upside down... I went from a vibrant, Post traumatic Post happy, loving, spontaneous, career stress disorder driver type A personality to essentially stress - nothing." Complications for the Baby Complications "I have had 5 unsuccessful pregnancies in a period of nine years. I had my gallbladder removed and had pancreatitis due to the severe HG. I went from weighing 125 pounds to weighing 98 pounds. I do not even know where to get help. I really want to experience being a mother." Pre-term labor Low birth weight Developmental delays Congenital heart disease Skeletal malformations Behavior/emotional problems Pregnancy loss and miscarriage (25% for Pregnancy HG pregnancies) HG A Journey Through HG Journey “To add insult to injury, our OB refused to authorize Zofran To and told Jen she was no longer eligible for disability. and On January 10th we had our follow On up appointment with our doctor. She still refused medication and, even though Jen was still 5 pounds below her pre-pregnant weight at about 23 weeks pregnancy, she would not allow further disability time.” further In honor of Jordan William, Trisomy 18, son to a HG mom Lost and Loved Angel The Voice of HG Women The “HG robbed me of the joys of pregnancy. It shattered my dreams of having a large family.” "I hate that this disorder "I makes me PETRIFIED of pregnancy, that it has to be so life altering, that I have to feel so sick for so long. Every day I think about HG, I feel like I am not the same person not since I have endured so much, dramatic as that sounds." Kendis "My 19 year old daughter My died on March 19 2002. died She was 13 weeks pregnant. and had been to the hospital twice the week before and diagnosed with Hyperemesis Gravidarum." “HG I have found touched every bit of my life, like tentacles, reaching into the farthest corners of my soul. “ A Journey Through Severe HG Journey “I was having a ton of iv's and my arms were covered in bruises. “ For some women, the vomiting is so severe that they must be placed on PICC lines or feeding tubes to help sustain them and their developing babies. “I have had IVs every week for 4 weeks and my arms have bruises up and down them. I have been trying to fight off having to have one because of the risks, but it has got to the point where I am 92 pounds . . .” “The experience is so raw and scary and yes the outcome is glorious but the journey almost killed me." How You Can Help How "With no family or support, we reluctantly put our daughter into daycare because I was unable to care for her." •Provide emotional support – Listen without judgment •Provide practical support – Help with household chores and childcare, transportation to medical appointments •Provide financial support – The more severe HG is, the higher the medical care costs involved •Be an advocate – Visit the HER foundation website to find practical ways that you can help those you know struggling with HG today and those who may struggle with it in the future "I was hospitalized [from] 5 ½ weeks [until] 17 weeks with admissions till delivery, the emotional [and] physical toll were horrific. [I was] vomiting 70+ times a day, nose bleeds, torn esophagus, burst blood vessels in my eye . . . My son has special needs." Good works are links that form a chain of love. - Mother Teresa Where to Find Help Where HER Foundation “Hyperemesis Education & Research Foundation provides education & support for mothers suffering from hyperemesis gravidarum and those who care for them.” With the right information, we can help others. www.HelpHER.org Information Support Hope The HER Foundation was founded in 2000 by a registered nurse, Kimber Wakefield MacGibbon, after suffering from nine months of severe hyperemesis gravidarum. You don't know me now Warm smiles, Dreams, Raucous laughter Energy, Passion ,Drive That was all before What HG Has Done to Me . . . Lost a Lov nd ed Ang el In H ono r of Cas ey L ee Before the flood of vomit came pouring out of me Ripping out my soul, my mind Taking with it the sure knowledge of who I am and what I am capable of All that is left is the memory of dark rooms and dark places in the corners of my mind that I did not know existed and fear may rise again There is no joy in creating life for me . . . Just the endless torment of days spent hoping, to no avail, that I could eat, or drink, or at least sleep until it was over At the end of each day there is no hope Just the prospects of another day with this new person Merely a shadow of my former self for a part of me died with you and now there is no reward Karen ...
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