28391 - PURSUING EQUALITY IN THE MIDST OF DISPARITY: HEALTH...

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TM Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities PURSUING EQUALITY IN THE MIDST OF DISPARITY: HEALTH AND WELL-BEING OF CHILDREN WITH DISABILITIES DON LOLLAR, Ed.D .
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TM GOALS OF THIS PRESENTATION Include Health Promotion for those living with disabilities as one priority for the conference Define “care” as the responsibility for services and interventions for those living with disabling conditions Highlight disparities Countries with lower vs. higher resources Individuals with vs. those without disabilities Infectious vs. congenital conditions Identify strategies to promote health and prevent secondary conditions in this population
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TM Points of Departure--1 Primary prevention of birth defects and developmental disabilities is a worthy, noble goal These activities should be vigorously pursued Even with intense efforts, and for the foreseeable future, children will continue to be born with problems or develop them early in life, impacted by Poor nutrition Poorly-controlled diseases Conflicts Other environmental factors, such as air quality
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TM Definition of “care” In this discussion, not only “maternal care” Rather, those interventions and strategies and programs that support and encourage the health and well-being of the child/youth/adult with a disability and their family Both uses of the term are important, but need clarification Poverty not only contributes to disability but the presence of a disability contributes to poverty, particularly in low resource countries Points of Departure--2
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TM MORTALITY, MORBIDITY, AND DISABILITY—BIRTH DEFECTS OUTCOMES MORTALITY—public health outcome using statistics on deaths MORBIDITY—public health outcome focusing on diseases, traumas, or injury (health conditions- classified by ICD) DISABILITY—public health outcomes related to health conditions that include limitations in personal activities and societal participation (classified by ICF) Chamie, 1995
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28391 - PURSUING EQUALITY IN THE MIDST OF DISPARITY: HEALTH...

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