Altruism needs of others closeness with those we

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Unformatted text preview: del, and the person who experiences the disorder, and their loved ones ! Altruism – needs of others ! “Closeness” with those we serve - an advantage or disadvantage?* *More on this in 2 weeks! Copyright 2013 - P.C. Doyle - 2 types of tools: general and specifi c (by disease, or children vs adult) - you need to take time to ask questions as a health care professional, and you need to be education on the kinds of things y ou will see (not just texbook information) - being close with a patient opens up the opportunity to fi nd out more from them Altruism: people want to give back to those that have the same problem, usually in the form of psychosocial support, and by providing information that is not given by health care professionals - gives a sense of purpose, a sense of hope, value and validation of ones life QOL as a Social Indicator Operationalized in terms of: Happiness, Satisfaction, and one’s overall sense of Well-Being A health-oriented framework! Copyright 2011 - P.C. Doyle - being able to ask a question and get an honest answer is valued by 99.8% of patients with all kinds of problems - the data suggests that this becomes more important as ones disease s everity becomes worse - typically these items are contexualized to a healthy condition that has been altered in some way - i n spite of a disease, people can be happy, fully satisfi ed and their well-being can be quite high (if not normal) - not being included in decision making, not being valued, etc., are all things that can alter these levels A survey of types of tools Pleasant affect Unpleasant affect Life satisfaction Domain satisfaction • Joy • Elation • Contentment • Pride • Affection • Happiness • Ecstasy • Guilt and shame • Sadness • Anxiety and worry • Anger • Stress • Depression • Envy • Desire to change life • Satisfaction with current life • Satisfaction with past • Satisfaction with future • Signification others’ views of one’s life • Work • Family • Leisure • Health • Finances • Self • One’s group Copyright 2013 - P.C. Doyle - none of these items are mutually exclusive, they are all connected - some of these unpleasant effects are infl uenced by external forces, not necessarily the disase or illness - the future that is unknown is frightening to all of us, but they are often not l ife threatening, but not knowing what tomorrow brings because of disase and illness can be threatening - when someone is pulled from their social group, their QOL will plumit (one has to have a sense of belonging) ! Do they cover traditional domains? ! Do they expand existing domains? ! Do they introduce new domains? physical, psychological, social taking these domains a little further Some explorations and findings from the literature! Copyright 2013 - P.C. Doyle -whenever you look at a written tool, you need to ask several questions 2 - there is no predictable course for one person along the continuum of their illness - you can't let written tools, or other things drive you, you have to talk to the patient Response Shift Phenomenon " “A change in the meaning of one’s selfevaluation of a target...
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