{[ promptMessage ]}

Bookmark it

{[ promptMessage ]}

C doyle they go hand in hand you know its kind of

Info iconThis preview shows page 1. Sign up to view the full content.

View Full Document Right Arrow Icon
This is the end of the preview. Sign up to access the rest of the document.

Unformatted text preview: eeling like a lost lamb, more frightened than before the surgery.” (fear, vulnerability) !  “Even the greatest surgeon doing a wonderful job cannot begin to address the empty, alone feeling, that is always there.” (loneliness, isolation) !  “In my 10 years I have seen at least 3 people die of broken hearts because they had nowhere to turn.” (physical consequences of multiple factors) Copyright 2013 - P.C. Doyle they go hand-in-hand !  “You know, its kind of funny (laugh), but I liked to you know, ‘roll in the hay’ and did it a fair bit, and I was, you know, good at it from what I was told. It’s all so changed. I probably couldn’t pay a man to have me these days and that hurts. It’s not like I’m old and unable, but they would find me so difficult and ugly to be with.” (sexuality, attractiveness) !  “It`s tough and I don`t know if I should just quit now or quit later`.” (loss of hope) Copyright 2013 - P.C. Doyle University of California Wine Wheel Quality of Life & Distress -  Individual, self-evaluations -  Physical, psychological, social, spiritual -  Change over time Distress QoL Ultimately, distress represents the opposite of QoL From: Bornbaum, 2009, 2010 Copyright 2013 - P.C. Doyle - distress is not just a psychological issue - distress moves along a continuum to where severe depression may evolve - it may change very dramatically from one little thing - about 30% of people in the study (of 60 people) said they felt distress, but 7 people said they had suicidal thoughts Copyright 2010 - P.C. Doyle - the terms associated with the wines can be broken down or expanded - in terms of QOL, think of paint swatches (there are the general c olours (domains), but some colours are hues that have parts of 2 c olours on them) - hues of perception that are specifi c to ones assessment of their QOL 4 Added benefits of findings from QOL instruments and follow-up inquiry ! Facilitates adaptation ! Reduces distress (multi-domain) ! Fosters acceptance So, we can adjust and expand our definition: Outcome: A change in the patient’s current and future health status that can be attributed to antecedent health care BUT, also one that influences well-being and satisfaction and social validation MM 1)  Objective conditions, or 2)  Subjective experience of life BPSM 3)  Including adaptation and coping - willingness to accept and make changes Copyright 2013 - P.C. Doyle - the better that one adapts, the better their perceived QOL, but this i s diffi cult because it takes time - if you can reduce distress, QOL tends to work in a recirprical fashion Why QOL Assessments? 1. 2. 3. 4. Burden of Illness V IDEO (CBC): "The Boy in the Moon" - Walker Brown is a child with CFC, and this video is of his dad discussing his illness Monitor diseas...
View Full Document

{[ snackBarMessage ]}

Ask a homework question - tutors are online