Children may lead to introduction of bias telephone

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Unformatted text preview: ms; " Quality of parent-child relationship Methodological Considerations: Instrument Characteristics Population Age Range " Age Range " Formats " Scale Choice TOOL domains Methodological Considerations: Parent as Proxy C-QOL CDLQI CHIP-CE (C) CHIP-CE (P) CHQ CLQI CP QOL-Child CPCHILD EQOL FS II(R) GCBI GCQ HRQL ITG-CASF ITQOL JAQQ OMO-22 PedsQL PHQ POSNA QOL SBQ TACQOL TAPQOL TedQL VOS WCHMP WeeFIM 0 2 4 6 8 10 12 14 16 18 20 7 Formats of Childhood QOL Instruments " Self-completed written questionnaire – most common, cost-effective; " Face-to-face interviews – useful in younger children, may lead to introduction of bias; " Telephone interview- less expensive, depends on comfort level of child; " Computer animation- younger children, simplifying data collection process. Faces Scale " e.g. PedsQL (child report 5-7 years) " “Is it hard for you to get along with other kids” (Social Functioning) Scale Choice " Visual Analogue Scale (VAS) – seldom used; used with older children; " Likert Scale – most common scale used; 3point, 5-point, 7-point; " Faces Scale/Pictures – for use with young children (5 years +) Psychometric Properties " Children rarely involved in empirical investigation of item selection " No gold standard of childhood QOL exists " Eiser & Mores (2001): systematic review of QOL instruments; most measures do not fulfill basic psychometric criteria Developmental Considerations Cognitive and Emotional Development " Developmental progression is universal for children, however pace of maturation varies and depends on dispositions and environment; " Attention should be paid to developing instruments that consider children’s emerging sense of self, cognitive capacity and emotional awareness; " Pre-schoolers (< 6 years): view themselves largely in physical terms; thinking mainly dichotomous; " Middle childhood (6-12 years): understand cause-and-effect relationships, use inductive logic; " Adolescence: primarily characterized in mental as opposed to physical terms; engage in deductive reasoning (if-then relationships); more abstract capacity; 8 QOL Tool at a Glance: PedsQL Happy Thanksgiving! Be Safe! " PedsQL core set: consists of 23 items " 4 domains: physical functioning, emotional functioning, social functioning, school functioning " Different versions for age groups: (2-4, 5-7, 8-12, 13-18) " Disease-specific modules for: asthma, rheumatology, diabetes, cancer, and cardiac conditions " http://www.pedsql.org/about_pedsql.html 9...
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