Whyisthissohard 1 2 thenatureofbiomedicaldata

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Unformatted text preview: actors, clearinghouses, insurers – Society: public health agencies, state medical boards, law enforcement agencies Complex roles: entities with justifiable Complex roles: entities with justifiable (and variable) rights to medical data • Third order: – Providers: internal and external QA entities (peer review, JCAHO), sponsors of clinical research – Patient: community support groups, personal friends – Payers: fraud detection (Medical Information Bureau), business consultants – Society: national security, bioterrorism detection Healthcare Information Healthcare Information Access Roles Community Support Internal QA External accreditation orgs Primary care Friends Legally Authorized Reps Spets Ancillaries Extended Family Immediate Patient Provider Family Admin. Clinical Trials Sponsors Staff Claims Processors Fraud Detection Subcontractors Payer Public Health Society State Licensure Clearinghouses Medical Information Bureau Insurers Business Consultants Law Enforcement Boards National Security Bioterrorism Detection Why is this so hard? Why is this so hard? 1. 2. The nature of biomedical data Complex interpersonal and organizational roles with respect to data 3. Patients who wish to exercise control over access to their data seldom understand the implications of their decisions Why is this so hard? Why is this so hard? 1. 2. The nature of biomedical data Complex interpersonal and organizational roles with respect to data 3. Patients who wish to exercise control over access to their data seldom understand the implications of their decisions 4. Personal preferences regarding data access change, sometimes suddenly Why is this so hard? Why is this so hard? 1. The nature of biomedical data 2. Complex...
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This document was uploaded on 01/14/2014.

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