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Unformatted text preview: on of issues related to disorders of sexual development including, but not limited to, androgen
insensitivity syndrome, congenital adrenal hyperplasia, Klinefelter syndrome, Turner syndrome, and several others as well as general forums
for discussion of any issues related to DSDs.
This project of the Consortium on Disorders of Sex Development offers
two monographs related to DSDs: Clinical Guidelines for the Management of
Disorders of Sex Development in Childhood and Handbook for Parents. These
monographs have been produced by a consortium consisting mainly
of: (1) clinical spets with experience helping patients with DSDs;
(2) adults with DSDs; and (3) family members (especially parents) of
children with DSDs. This site also offers several links to support groups
and portraits of individuals with DSDs.
A support forum that encourages all involved, including parents of children with Turner syndrome, Klinefelter syndrome, androgen insensitivity syndrome, congenital adrenal hyperplasia, and 5-alpha reductase.
The organization is run by those who themselves have the conditions
and believes in positive reinforcement for better education. Resources 185 Intersex Society of North America
A comprehensive site that contains a wealth of information about the
character of intersex, several personal stories, their recommendations
for assessing and dealing with health issues related to disorders of sexual development, tips for parents, a teaching kit to accompany undergraduate courses that discuss intersex, and links to a comprehensive list
of support groups.
Organization Intersex International—USA (OII-USA)
The U.S. affiliate of the Organisation Intersex International, a nonprofit
organization incorporated in Quebec, Canada. OII-USA devotes itself
to preventing genital mutilation, medicalization, and normalization
without consent and offers another face to intersex lives and experience by highlighting the richness and diversity of intersex identities and
culture. According to this site, OII is the largest intersex organization
in the world.
A partial list of their offerings includes: Official Positions, FAQ on
Intersex, FAQ About OII, Brochures, Medical Information, Online Support Group, Condition Specific Support Group, Fact Sheet on DSD
Activism, Why Is OII Not Using the Term “DSD,” and Intersexuality in
An online community connecting families living with congenital gender variations. This site offers several different forums for discussion of
issues related to different genetic conditions including Klinefelter syndrome and Turner syndrome, and offers a handbook for parents written
by parents. 186 Resources Books
Dreger, Alice Domurat. Hermaphrodites and the Medical Invention of Sex
(Cambridge, MA: Harvard University Press, 2000).
Dreger, Alice Domurat, ed. Intersex in the Age of Ethics (Hagerstown, MD:
University Publishing Group, 2000).
Laqueur, Thomas. Making Sex: Body and Gender from the Greeks to Freud
(Cambridge, MA: Harvard University Press, 1990).
Preves, Sharon E. Intersex and Identity: The Contested Self (Piscataway, NJ:
Rutgers University Press, 2003). People
Contact Person for Androgen Insensitivity Syndrome: Canada
A contributor to this book and a woman with androgen insensitivity
syndrome, and a resource for information about AIS and for individuals
seeking information or help. Of all the people I interviewed, only Nicky
offered me her address and phone number as a resource for helping
others. I am most grateful to her for that.
#17, 3031 Williams Road, Richmond, BC, Canada V7E 1H9
Telephone: (604) 274-9630 Index ACTH hormone, 69
Adam, 144; as first androgyne, 25
adrenal androgens, 56–57, 69, 99
adrenal glands, 99; and hormones,
56; and human sexual
Agni, Lord, 143. See also
Nataraja; Shiva the Divine; Vishnu
Alaniz, Dorothy Maree, 68, 70. See
also Kailana Sidrandi Alaniz;
Rudolph Andrew Alaniz
Alaniz, Kailana Sidrandi, 68–69, 71;
and gender identity disorder
(GID), 72–74; as hermaphrodite,
70, 73. See also Dorothy Maree
Alaniz; Rudolph Andrew Alaniz
Alaniz, Rudolph Andrew: congenital
adrenal hyperplasia (CAH)
of, 69; as hermaphrodite, 69; mosaicism of, 68. See also
Dorothy Maree Alaniz; Kailana
Albright, Fuller, 62
Alexander the Great, 10
anaphase lag, 62
De Re Anatomica (Columbus), 19, 20
androgen insensitivity syndrome
(ASI), 106, 133; as complete,
103–5, 107, 119, 121, 135–36;
as partial, 103–4, 107, 121, 133;
as sex reversals, 109. See also
androgens, 31, 69
androgyne: social order, as threat to,
androstenedione, 31, 56–57, 99
Archives of Childhood Diseases, 157 187 188 Index Ardhanarishwar, 143–44. See also
Bhairava; Lord Agni; Nataraja;
Shiva the Divine; Vishnu
arginine vasotocin (AVT)
Aristotle, 9, 11; sex, views on, as...
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- Spring '14