lecture 12 - ethics

Ex studying stuttering by showing how it can be

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Unformatted text preview: tradeoff of conducting research • Do the benefits outweigh the cost of doing the research? • ex: studying stuttering by showing how it can be produced in children – the participants had their lives “ruined”, and did not even directly benefit from the study Professional Professional Ethics The The Ethical Dilemma • Usually decided by an IRB • But ultimately the decision lies with with the researcher even if an IRB allows the research Ethical Ethical Guidelines Respect for Persons & Their Autonomy • (Most) people can make decisions decisions for themselves • Participants have the right to decide whether to participate in a study or not Ethical Ethical Guidelines Respect Respect for Persons & Their Autonomy • If possible, participants should should give informed consent before participating • Informed Consent details the study and the expected benefits and risks Ethical Ethical Guidelines Beneficence Beneficence & Nonmaleficence • Beneficence: “do good” • Nonmaleficence: “do no harm” • Ideally, research should have positive effects without negative effects for the participants Ethical Ethical Guidelines Justice Justice • If possible, the actual participants should be the ones ones who receive the benefits of the study • ex: even placebo patients get some benefit from a drug study or maybe they get the new drug later; the stuttering children who were made to stutter could not have their stuttering cured with the new knowledge Ethical Ethical Guidelines Trust Trust • Don’t lie to / deceive participants (but it’s done) • Don’t violate promises of confidentiality / anonymity Ethical Ethical Guidelines Fidelity & Integrity • Report results truthfully and accurately • Definitely do not make up or falsify data! Treatment Treatment of Participants Treatment Treatment of Participants IRBs IRBs • = Institutional Review Board • Partially responsible for the “ethical “ethical dilemma”, but that’s mostly up to the researcher • More directly involved in protecting participants Treatment Treatment of Participants IRBs • After WWII, realized the Nazis had conducted some horrendous horrendous rese...
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