This preview shows page 1. Sign up to view the full content.
Unformatted text preview: 1, 741–66 (2001).
37. Lynch, H. T. & de la Chapelle, A. Genomic medicine: hereditary
colorectal cancer. N. Engl. J. Med. 348, 919–932 (2003).
38. Gardner, M. J. et al. Genome sequence of the human malaria
parasite Plasmodium falciparum. Nature 419, 498–511 (2002).
39. Holt, R. A. et al. The genome sequence of the malaria mosquito
Anopheles gambiae. Science 298, 129–149 (2002).
40. Anderlik, M. R. & Rothstein, M. A. Privacy and confidentiality of
genetic information: What rules for the new science? Annu. Rev.
Genom. Hum. Genet. 2, 401–433 (2001).
41. Hudson, K. L., Rothenberg, K. H., Andrews, L. B., Kahn, M. J. E.
& Collins, F. S. Genetic discrimination and health-insurance —
An urgent need for reform. Science 270, 391–393 (1995).
42. Rothenberg, K. et al. Genetic information and the workplace:
Legislative approaches and policy challenges. Science 275,
43. Fuller, B. P. et al. Policy forum: Ethics — privacy in genetics
research. Science 285, 1359–1361 (1999).
44. Miller, P. S. Is there a pink slip in my genes? J. Health Care Law
Policy 3, 225–265 (2000). Acknowledgements
The formulation of this vision could not have happened without the
thoughtful and dedicated contributions of a large number of
people. The authors were greatly assisted by Kathy Hudson, Elke
Jordan, Susan Vasquez, Kris Wetterstrand, Darryl Leja and Robert
Nussbaum. A subcommittee of the National Advisory Council for
Human Genome Research, including Wylie Burke, William Gelbart,
Eric Juengst, Maynard Olson, Robert Tepper and David Valle,
provided a critical sounding board for draft versions of this
document. We also thank Aravinda Chakravarti, Ellen Wright
Clayton, Raynard Kington, Eric Lander, Richard Lifton and Sharon
Terry for serving as working-group chairs at the meeting in
November 2002 that refined this document. Finally, we thank the
hundreds of individuals who participated as workshop planners
and/or participants during this 18-month process. 847...
View Full Document
- Fall '14
- The Tempest