collins_genomicsNature2003

Data release an important lesson of the hgp has been

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Unformatted text preview: enomic science. The NHGRI will also focus on issues that would assist the public in benefiting from genomics, such as privacy of genetic information, access to genetics services, direct-to-consumer/providers marketing, patenting and licensing of genetic information, appropriate treatment of human participants in research, and standards, usefulness and quality in genetic testing. Data release An important lesson of the HGP has been the benefit of immediately releasing data from large-scale sequencing projects, as embodied in the Bermuda principles (www.gene.ucl.ac.uk/hugo/bermuda.htm). Some other large-scale data production 846 projects have followed suit (such as those for full-length cDNAs and single-nucleotide polymorphisms), to the benefit of the scientific community. Scientific progress and public benefit will be maximized by early, open and continuing access to large data sets and by ensuring that excellent scientists are attracted to the task of producing more resources of this sort. For this...
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