collins_genomicsNature2003

Many issues currently swirl around the proper conduct

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Unformatted text preview: g (www4.od.nih.gov/oba/sacgt/ reports/oversight_report.pdf ). That recommendation has not yet been acted on; meanwhile, numerous websites offering unvalidated genetic tests directly to the public, often combined with the sale of ‘nutraceuticals’ and other products of highly questionable value, are proliferating. Many issues currently swirl around the proper conduct of genetic research involving human subjects, and further work is needed to achieve a satisfactory balance between the protection of research participants from harm and the ability to conduct clinical research that benefits society as a whole. Much effort has gone into developing appropriate guidelines for the use of stored tissue specimens (www.georgetown.edu/research/nrcbl/ nbac/hbm.pdf ), for community consultation when conducting genetic research with identifiable populations (www.nigms.nih.gov/ news/reports/community_consultation.html #exec), and for the consent of non-examined family members when conducting pedigree research (www.nih.gov/sigs/bioethics/nih...
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