control when such a serious diagnosis is given to their child. It is important as practitioners that we educate parents on what to expect from this disease and the possible complications that can occur in the future. Anticipatory guidance for these parents are much more involved. Additionally, the pillars of sickle cell family education involve hydration and pain control. Parents need to truly understand the importance of maintaining their child’s hydration status with regular fluid intake, avoiding dehydration by drinking water before, during and after physical activity, and managing pain before it become unbearable with nonsteroidal anti-inflammatories, acetaminophen and alternative interventions such as rest, heat therapy, relaxation and distraction (National Heart, Lung and Blood Institute, 2014). Following these guidelines can greatly improve the patient’s quality of life and reduce the number and severity of hospital stays. National Heart, Lung and Blood Institute. (2014 ). Evidence-based management of sickle cell disease: Expert panel report, 2014. Retrieved from - topics/all-publications-and-resources/evidence-based-management-sickle-cell-disease- expert-0
David, Good post David. I agree with you that the best way to manage patients with sickle cell disease is through education. Hydration for the sickle cell patient should not be viewed as only a prevention strategy, but more of a lifestyle habit. Adequate water intake on a routine basis in addition to prophylactic hydration before, during and after strenuous activity should be emphasized as a standard practice for everyday living. According to the National Heart, Lung and Blood Institute (2018), living with sickle cell disease involves pursuing a healthy lifestyle by being physically active, eating a heart healthy diet, quitting smoking, and learning how to manage pain with a combination of medications and alternative methods. Using techniques such as heating pads, warm baths, distraction, relaxing activities, massage therapy, physical therapy and acupuncture are great alternative pain relief methods that may be use in place of or in addition to medications (National Heart, Lung and Blood Institute, 2018). Chronic pain regimens may include medications such as amitriptyline, duloxetine, gabapentin, ibuprofen, acetaminophen and sparing use of opioids (National Heart, Lung and Blood Institute, 2018). National Heart, Lung and Blood Institute. (2018 ). Sickle cell disease. Retrieved from
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- Summer '17
- Sickle-cell disease, National Heart, Blood Institute