Making data available through the Internet, security cannot becompromised. Apart from the usual password protection, recent issues suchas denial of service need to be addressed.Building the infrastructure for distributed medical data mining is animportant step in discovering new knowledge from medical records. It isnecessary to evaluate different middleware strategies, which integrateclinical data from a variety of hospital-based data sources together withpatient-reported health information, and present the data via a secure webinterface [CoUmann, 2001]. A promising trend in middleware organization isdevelopment of specialized Internet services that will take care not only ofavailability of data but also ofquality,security and privacy3.2 Patient Record StandardsA patients' medical records are generally fragmented across multipletreatment sites, posing an obstacle to clinical care, research, and publichealth efforts.Electronic medical records and the Internet provide atechnical infrastructure on which to build longitudinal medical records thatcan be integrated across care sites. Choices about the structure andownership of these records will have a profound impact on the accessibilityand privacy of patient information [Tang, 1999]. The technology promisingto unify the currently disparate pieces of a patient's medical record may
Chapter 16: Data Mining from Multimedia Patient Records561actually threaten the accessibility of the information and compromisepatients' privacy. Integrated computerized medical record should have thecharacteristics presented in Table1[Mandl, 2001].Two main impediments stand in the way of these requirements. Firstly,patients are becoming increasingly anxious about the privacy of theirmedical records. Secondly, most healthcare institutions do not provideeffective access for patients to their own data and, despite technicalfeasibility; they show little willingness to share data with their competitors[Mandl, 2001]. Therefore, many current systems fragment medical recordsby using incompatible means of acquiring, processing, storing, andcommunicating data. These incompatibilities may result from a failure torecognize the need for interoperability, or they may be deliberate, with theaim of locking consumers into using a particular system. Either way, thepractice precludes sharing of data across differentapplications andinstitutions.Patient record systems should be designed so that they can exchange alltheir stored data according to public standards and, at the same time, thatpatients should have control over access and permissions. Building softwarecompliant with public standards will enable connectivity and interoperabilityeven of diverse systems. Patients' control will allow protection of privacyaccording to individual preferences and help prevent some of the currentmisuses of personal medical information. However, views on the shape ofstandard records differ in emphasis: some anticipate records consisting of acollection of web documents, whereas others emphasize the importance ofcoded structured data that can be retrieved for aggregation, analysis, anddecision support.
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