07275022 07285828 Mark I wanted to ask you just a little bit about self

07275022 07285828 mark i wanted to ask you just a

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07:27:50:22 – 07:28:58:28 Mark, I wanted to ask you just a little bit about self determination. Pennsylvania certainly would be one of the leaders I suppose in the self determination trend. Early on it had a grant from the Robert Wood Johnson Foundation to do pilot projects in self determination. We spoke again with Debbie Robinson about her role in promoting self determination to members of Speaking for Ourselves and other folks with disabilities, and she said on reflection, she said she wished she’d known more about what self determination entailed. At least programmatically because she was supporting people who had never had basic choices such as what they could have for meals, what they could watch on television. And to ask people to make those larger choices of budget and control maybe seemed too much and I wondered if that was your impression also or what you felt about the success of self determination in Pennsylvania? 07:29:10:08 – 07:35:59:08 Mark: The principles of self determination, freedom, authority, choices, is something that was just inherent in just the very fabric of what self advocacy was about. So, I thought it was just a new name for something that I remember as deeply believed in. And we had always built into our work retreats and time for reflection, Myles Horton who was one of the really civil rights founders, leaders, promoters, in the background ran a leadership institute Martin Luther King went to, Rosa Parks went to. And he always said you needed action and then you needed time for reflection. He kind of drew this as a circle kind of thing. And he said, ‘Times when you’re not acting or you’re not moving so fast, you have to have reflection time.’ So we always tried to do that and out of our reflection time came this new idea that was sweeping the country of self determination. Many states were doing it. Robert Wood Johnson was putting out these grants. Pennsylvania was gonna do something so it was like, okay, how do we embrace
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18 that? How do we get into that? So we developed a training program, self determination. Carolyn Morgan and Debbie Robinson ran it. We did it around the state and had components in it. And they were the elements that people want in their life but the mechanics, the fundamental piece of what made self determination different from other things was people gaining control of the money. That was a huge systemic and structural change that people get control of their money. So it wasn’t just as simple as, do I want Coke or Pepsi? Or you go to McDonalds and do you want a Big Mac or a Whopper? It really was the notion that if you get control of the money, rather than making those choices was okay if don’t, if I don’t buy a soda everyday this week, at the end of the week I’m gonna have seven dollars available and I’m gonna get something that I want. And so it really was a profound change. Pennsylvania had a project and what we did was we’re able to convince Robert Wood Johnson to put on one of their regional conferences and they had seven or eight around the country. And we were colleagues with the leader of
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