All 1 1 interviews and 4 focus groups audio recorded

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All 1-1 interviews and 4 focus groups audio recorded and fully transcribed Notes taken during open meetings and 1 focus group typed up Thematic analysis based on the 10 recommendations in the easy read document Open coding to ensure other issues raised by participants were recognised
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Findings: what participants prioritised 1.Increased public and professional awareness of dementia 3. Good quality early diagnosis and interventions 4. Good quality information for those with dementia and their carers 7. Improved quality of care and services for people with dementia and their carers
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1.Increased public and professional awareness of dementia. Carer: ‘ But you know what he said to me on the way out “next time you ring the doctor, ring the police first for our protection”. Well I won’t be ringing the doctor on call again you know’. (1-1 interview). Carer: ‘People are really ignorant; I was myself so I can’t say anything. And, again you know, no one tells you, no one sits down and says dementia is this and this is what it entails or these are the barriers and this is what, you know may happen or whatever. There is no education at all.’ ( 1-1 interview)
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Carer: ‘it was extremely difficult to get a diagnosis. Unbelievably, it took two and a half years. And to me it is not good enough, I was sent from pillar to post… They kept saying there’s nothing wrong, there’s nothing wrong but I knew there was.’ (1-1 interview) Carer: ‘and I could have well done with the professionals at the clinics at the start sitting down and doing that [giving me more information and support] … because when you come newly into it, you have no idea’ (1-1 interview). 3. Good quality early diagnosis and interventions
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4. Good quality information for those with dementia and their carers Carer: ‘timely information, accurate information, and simplistic pathways around that information… it’s nearly as if the health service
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